Supporting families affected by retinoblastoma
The Childhood Eye Cancer Trust (CHECT) is the only UK charity solely dedicated to helping families and individuals affected by retinoblastoma, a rare form of eye cancer. We provide support, raise awareness and fund research into prevention and treatment.
Learn the signs and symptoms of retinoblastoma
Symptoms
Retinoblastoma is highly treatable but early diagnosis is vital. The two main symptoms are a white glow and a squint. If your child has these, don’t ignore them.
The white glow
Seeing a white glow in the eye of a child in a photograph or in certain lighting can be really worrying. Find out what causes white eye and what to do if you see it.
Get support
We provide ongoing support and information to anyone affected by retinoblastoma. If you need to talk, get in touch with one of our support workers today.
Become a member of the Childhood Eye Cancer Trust
Becoming a member of the Childhood Eye Cancer Trust (CHECT) is easy, FREE and is open to anyone affected by retinoblastoma, their friends and family, all supporters of CHECT and health professionals.
CHECT TYA podcasting day!
CHECT PhD researcher Nicola O’Donnell recently organised a podcasting event in Birmingham for teens and young adults, as part of sharing the results of her research study. https://youtu.be/syTNshXv0wg?si=MirT62QOkseuPVpe Nicola says: “Excitingly, I have received a lot...
Cardiff family event
We held our latest CHECT Family Day at Techniquest science centre in Cardiff. Sarah, Beth and Petra from the CHECT team were greeted by glorious Welsh sunshine as we came out of the train station. We just about had time to start setting up for the day, when excited...
Understanding how having Rb affects how you think and feel
https://youtu.be/00XhTZMhbEU We spoke to Nicola O'Donnell about her CHECT-funded research, 'Understanding how having Rb affects how you think and feel': Retinoblastoma is a rare eye cancer affecting 40-50 UK children a year. Although it is highly curable, this...
“We spotted my son’s cancer in his eye as he played with toys”
A mum from the Isle of Wight is urging other parents to look out for the tell-tale signs of eye cancer this World Retinoblastoma Awareness Week, after their five-year-old son Arlo was diagnosed with retinoblastoma, a rare eye cancer that typically affects children...
Ivy’s glittery eye!
We were delighted to receive this heartwarming message from Ivy's mum Ewelina, after Ivy lost her eye to retinoblastoma. Ewelina said, "My daughter got inspired by other kids showing off their special artificial eyes so she asked her ocular prosthetist in Eye Pavilion...
Michael’s Journey: From retinoblastoma to fitness expert
For World Retinoblastoma Week, we spoke to Michael about his journey from the childhood eye cancer retinoblastoma, his enucleation and beyond! Background History and Diagnosis My name is Ayokunle Michael Omotayo (Michael), and I was born on 1st October 1992 in Kings...